Unless you have lived with it, you could not possibly begin to understand. And as I type this, I know I have been told numerous times, “I understand.” But really, how could you? How could I even begin to explain what it is like to live with someone who has such a severe mental illness. How can you explain to someone that when you think, “I want off this crazy train?” you actually really mean it, but you know it won’t happen and this is your life, this is the life that is given to you and there is no way out or off…and as bad as it is for you, it doesn’t even begin to compare to the one who is suffering from the illness.
How do you find hope when there is no hope?
I have a daughter who suffers from Reactive Attachment Disorder (RAD) and Borderline Personality Disorder, as well as anxiety and depression and when it rears its ugly head, let’s throw in some Oppositional Defiance Disorder (ODD) as well.
It’s not her fault. She didn’t ask for it. She can’t help it. And there are times when she cannot control it. So it is constant work on all of her family to help her thru it.
So what does that look like? It means we monitor her meds closely. And you can’t for a moment think that she can take charge of this herself, although eventually, she’s going to have to in order to function in the adult world.
It means, when she doesn’t want to work and she is in your face screaming at you, you still have to remain calm and not react, and somehow hold her accountable anyway.
It means when she breaks into your most personal things and absolutely has no regard for anyone but herself, because that is truly all she can think about when she is triangulating and spiraling downhill quickly, then YOU have to remember that it isn’t personal, she does love you, and you have to be the bigger person.
It means when she does the same to her siblings, friends, and those who are close to you, you have to help them thru it and remind them that it isn’t personal, and although they have a right to feel the way they do, they somehow need to understand that she can’t help it. That it doesn’t make it ok, but that she is out of control.
It means that when she doesn’t get the reaction that she desperately wants, because you are trying so hard to give her what she desperately needs, she will do anything and everything to get a reaction. She will follow you around and get in your face and go from extreme highs to extreme lows until you are backed into a corner, and for her safety and everyone’s safety in the household, you have no choice but to do the one thing you know will only set her back even further.
It means that you just may have to convince yourself that you are not going crazy. So, you take her to the hospital in hopes of saving her from herself. In hopes of getting her stable enough to try and bring her home and start all over again.
You have a friend drive while you sit in the back with her to keep her safe.
You take her and listen to her beg you not to leave her there; you listen to her cry out because she wants to know if her life is always going to be like this…in and out of hospitals.
You take her and listen to her tell you that she will never be able to trust you.
You watch her “attach” to the friend who is strong enough to go with you in case she bolts and harms herself.
You sit with her for hours, and watch her go from love and fear to hate and defiance.
And then, you watch her walk thru the doors once again, the doors that continue to take her away from you. The doors which you cannot walk thru. You can’t go with her, because for this part, she has go it alone. And you pray that she knows that you would go with her if you could. That you truly never have left her side, even though she feels completely and utterly alone.
And the guilt is almost unbearable, because it’s not that you don’t care; it’s that you have played this game so much, that you are able to allow the numbness to take over temporarily, so that the others don’t see how crushed and broken you are on the inside. And then, you remind yourself, that you are strong. God gave you this beautiful, broken child because He knew you would be strong enough to do what you have to to help her. And that when you are at your weakest, He will give you the strength you need to take one more step.
I will never give up on her; even when she has given up on herself. My beautifully broken daughter.